My Annual MS MRI Update

My annual MRI was this past week and I will get to the results in a minute.

First, I want to start this post off by thanking those who let me pray for them during my MRI. If you saw my story I asked to be flooded with prayer requests because it is the best way to pass the time while getting the MRI. Several people shared some things that I wouldn’t otherwise have known and it just warms my heart that you trusted me with details of your life. I will continue to pray for those of you that reached out. Also, I tried really hard to pray for those that I already knew what was going on in your life even if you didn’t reach out. 

This MRI had to be one of the smoothest processes. They actually hooked up my IV before entering the room and I swear to you I didn’t even feel the needle. It was awesome. They did have me wait for a while after getting my IV and since I had already locked my phone in the locker I used that time as extra time to pray. It was nice too because my mind was completely clear of beeping and banging. Not that that matters to God. 

Honestly, in the days leading up to my MRI I started to feel a bit anxious and the day of I was sick to my stomach. I could hardly eat which, is incredibly unusual for me. I think I had this gut feeling that my scan wasn’t going to come back perfect. I was anxious thinking about what meds I would go to next and if I would need to be worried about my long-term health. 

There is some good news and some bad news. But, the bad isn’t so bad. 

The bad news is that they did find two new lesions. One is currently active. And, I will be switching meds soon once insurance approves and all goes through. 

The good news is that I haven’t experienced any of the symptoms. The good news is they are incredibly small. The other good news is my neurologist still sounds positive about my disease. He continues to say that if it weren’t for my scans he wouldn’t think I have MS. 

But, I was a little disappointed. I don’t want to see my MS active at all. I know each and every little dot no matter how big or small impacts my overall health. But, it is ultimately in God’s hands. I can’t control what happens, I can only trust my doctors and hope that the next treatment will work.

The goal is to get on a disease-modifying therapy aka drug that will keep my MS stable. I want my next scan to not show any new lesions and to find something that would stop the progression of the disease. I have a feeling my anxiety will be high when my next scan comes around, but the efficacy of this new drug is supposed to be pretty high. 

My personal goal is to stay/feel as normal as possible for as long as possible and I want to do whatever that is that will stop this disease from being active even if they are small lesions that I haven’t noticed. 

I want to be able to continue to go for walks, jump on the trampoline with my kids, go swimming with my kids, run around and play with my kids. I want traveling and everything that I do day-to-day to continue to be easy. I want to continue to play sports and be active.

So, saying goodbye to Vumerity soon and the next step is Kesimpta. It will eventually be a once-a-month injection. In the first month, there are several injections to “ramp up”. I plan to eventually write a blog sharing more about this treatment. 

Thank you for all your prayers, support, and love. I appreciate having a place to share my journey, pray for others and let others pray for me. 

May the Lord bless you and keep you; the Lord make his face shine on you and be gracious to you; the Lord turn his face toward you and give you peace.

Numbers 6:24-26